Rare Conditions & Diseases
See also Rare Conditions & Diseases on - Google - ODP -  -  -
Link Collection
Organizations
Conditions & Diseases
Contact Us
 
bulletCanadian Organization for Rare Disorders (CORD) - Canada (CA)
bulletEuropean Organization for Rare Diseases (Eurordis)
bulletInternational Rare Disease Support Network (IRDSN)
bulletNational Organization for Rare Disorders (NORD)
bulletNew Zealand Organisation for Rare Disorders (NZORD) - New Zealand (NZ)

 Aarskog Syndrome - Achromatopsia - Aicardi Syndrome - Alagille Syndrome - Alstrom Syndrome - Alveolar Capillary Dysplasia - Klinefelter Syndrome - Laryngeal Papillomatosis - Pompe Disease -  -  -  -

bulletAdrenoleukodystrophy Foundation (ALD Foundation)
bulletAicardi Syndrome Foundation (ASF) - rare disorder
bulletAmerican Syringomyelia Alliance Project (ASAP) - chronic disorder involving the spinal cord
bulletCanadian Hereditary Angioedema Society (CHAES) - Canada (CA)
bulletCanadian Organization for Rare Disorders (CORD) - Canada (CA)
bulletChromosome Deletion Outreach (CDO)
bulletCri du Chat Support Group of Australia - Australia (AU)
bulletCri du Chat Support Group of South Africa - South Africa (ZA)
bulletCri du Chat Syndrome Support Group - United Kingdom (UK)
bulletEuropean Organization for Rare Diseases (Eurordis)
bulletFive P Minus Society - Cri du Chat Syndrome
bulletHermansky Pudlak Syndrome Network (HPS) - genetic metabolic disorder
bulletInternational Rare Disease Support Network (IRDSN)
bulletInternational Still's Disease Foundation (ISDF) - Rare Disease
bulletInternational Pemphigus Foundation (IPF) - Rare Skin Disease
bulletLowe Syndrome Association (LSA) - a rare genetic condition that causes physical & mental handicaps, and other medical problems.
bulletLowe Syndrome Trust (LST) - United Kingdom (UK)
bulletMastocytosis Society, The - Rare disorder
bulletNational Organization for Rare Disorders (NORD)
bulletMichigan Chapter - National Organization for Rare Disorders (NORD)
bulletShwachman-Diamond Syndrome Canada (SDSC)  Blood disorder
bulletShwachman Diamond Syndrome International (SDSI) Blood Disorder
bulletWilliams Syndrome Foundation (WSF) - rare genetic disorder

bulletNational Organization for Rare Disorders (NORD) - Michigan Chapter

 

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This page was last updated 12 March, 2008Webmaster@TheAgapeCenter.com

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