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Canadian Organization for Rare Disorders (CORD) - Canada (CA)
European Organization for Rare Diseases (Eurordis)
International Rare Disease Support Network (IRDSN)
National Organization for Rare Disorders (NORD)
New Zealand Organisation for Rare Disorders (NZORD) - New Zealand (NZ)

 Aarskog Syndrome - Achromatopsia - Aicardi Syndrome - Alagille Syndrome - Alstrom Syndrome - Alveolar Capillary Dysplasia - Klinefelter Syndrome - Laryngeal Papillomatosis - Pompe Disease -  -  -  -

Adrenoleukodystrophy Foundation (ALD Foundation)
Aicardi Syndrome Foundation (ASF) - rare disorder
American Syringomyelia Alliance Project (ASAP) - chronic disorder involving the spinal cord
Canadian Hereditary Angioedema Society (CHAES) - Canada (CA)
Canadian Organization for Rare Disorders (CORD) - Canada (CA)
Chromosome Deletion Outreach (CDO)
Cri du Chat Support Group of Australia - Australia (AU)
Cri du Chat Support Group of South Africa - South Africa (ZA)
Cri du Chat Syndrome Support Group - United Kingdom (UK)
European Organization for Rare Diseases (Eurordis)
Five P Minus Society - Cri du Chat Syndrome
Hermansky Pudlak Syndrome Network (HPS) - genetic metabolic disorder
International Rare Disease Support Network (IRDSN)
International Still's Disease Foundation (ISDF) - Rare Disease
International Pemphigus Foundation (IPF) - Rare Skin Disease
Lowe Syndrome Association (LSA) - a rare genetic condition that causes physical & mental handicaps, and other medical problems.
Lowe Syndrome Trust (LST) - United Kingdom (UK)
Mastocytosis Society, The - Rare disorder
National Organization for Rare Disorders (NORD)
Michigan Chapter - National Organization for Rare Disorders (NORD)
Shwachman-Diamond Syndrome Canada (SDSC)  Blood disorder
Shwachman Diamond Syndrome International (SDSI) Blood Disorder
Williams Syndrome Foundation (WSF) - rare genetic disorder

National Organization for Rare Disorders (NORD) - Michigan Chapter

 

This page was last updated 17 March, 2004.  [email protected]