Conditions-Diseasesold

Rare Conditions & Diseases / Associations & Organizations






 








See also Rare Conditions & Diseases on -

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Canadian Organization for Rare Disorders (CORD)
– Canada (CA)


European Organization for Rare Diseases (Eurordis)


International Rare Disease Support Network (IRDSN)


National Organization for Rare Disorders (NORD)


New Zealand Organisation for Rare Disorders (NZORD)
– New Zealand (NZ)



 Aarskog Syndrome -
Achromatopsia -
Aicardi Syndrome -
Alagille Syndrome -
Alstrom Syndrome -
Alveolar Capillary Dysplasia
Klinefelter Syndrome -
Laryngeal Papillomatosis
Pompe Disease –  – 
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Adrenoleukodystrophy Foundation (ALD Foundation)


Aicardi Syndrome Foundation (ASF) – rare disorder


American Syringomyelia Alliance Project (ASAP) – chronic disorder involving the spinal cord


Canadian Hereditary Angioedema Society (CHAES)
– Canada (CA)


Canadian Organization for Rare Disorders (CORD)
– Canada (CA)


Chromosome Deletion Outreach (CDO)


Cri du Chat Support Group of Australia
– Australia (AU)


Cri du Chat Support Group of South Africa
– South Africa (ZA)


Cri du Chat Syndrome Support Group
– United Kingdom (UK)


European Organization for Rare Diseases (Eurordis)


Five P Minus Society – Cri du Chat Syndrome


Hermansky Pudlak Syndrome Network (HPS) – genetic metabolic disorder


International Rare Disease Support Network (IRDSN)


International Still's Disease Foundation (ISDF) – Rare Disease


International Pemphigus Foundation (IPF) – Rare Skin Disease


Lowe Syndrome Association (LSA) – a rare genetic condition that causes physical &
mental handicaps, and other medical problems.


Lowe Syndrome Trust (LST) – United Kingdom (UK)


Mastocytosis Society, The – Rare disorder


National Organization for Rare Disorders (NORD)






Michigan Chapter – National Organization for Rare
Disorders (NORD)




Shwachman-Diamond Syndrome Canada (SDSC)  Blood disorder


Shwachman Diamond Syndrome International (SDSI)
Blood Disorder


Williams Syndrome Foundation (WSF) – rare genetic disorder








National Organization for Rare Disorders (NORD) – Michigan
Chapter


 



This page was last updated
17
March, 2004
Webmaster@TheAgapeCenter.org





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Jeremy Stumpf

Jeremy ist einer von wenigen Experten im Gesundheitswesen. Sein Wissen über die allgemeine Gesundheit & Medizin sind einzigartig, wewegen er diese auch mit seinen Lesern teilen möchte. Jeremy berichtet für Sie kostenlos über die aktuellsten Gesundheits-Trends für Jung und Alt.

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