Rare Conditions & Diseases / Associations & Organizations

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	Canadian Organization for Rare Disorders (CORD) – Canada (CA)
	European Organization for Rare Diseases (Eurordis)
	International Rare Disease Support Network (IRDSN)
	National Organization for Rare Disorders (NORD)
	New Zealand Organisation for Rare Disorders (NZORD) – New Zealand (NZ)

Aicardi Syndrome Foundation (ASF) – rare disorder

American Syringomyelia Alliance Project (ASAP) – chronic disorder involving the spinal cord

Canadian Hereditary Angioedema Society (CHAES)
– Canada (CA)

Canadian Organization for Rare Disorders (CORD)
– Canada (CA)

Chromosome Deletion Outreach (CDO)

Cri du Chat Support Group of Australia
– Australia (AU)

Cri du Chat Support Group of South Africa
– South Africa (ZA)

Cri du Chat Syndrome Support Group
– United Kingdom (UK)

European Organization for Rare Diseases (Eurordis)

Five P Minus Society – Cri du Chat Syndrome

Hermansky Pudlak Syndrome Network (HPS) – genetic metabolic disorder

International Rare Disease Support Network (IRDSN)

International Still’s Disease Foundation (ISDF) – Rare Disease

International Pemphigus Foundation (IPF) – Rare Skin Disease

Lowe Syndrome Association (LSA) – a rare genetic condition that causes physical &
mental handicaps, and other medical problems.

Lowe Syndrome Trust (LST) – United Kingdom (UK)

Mastocytosis Society, The – Rare disorder

National Organization for Rare Disorders (NORD)

Shwachman-Diamond Syndrome Canada (SDSC) Blood disorder

Shwachman Diamond Syndrome International (SDSI)
Blood Disorder

Williams Syndrome Foundation (WSF) – rare genetic disorder

This page was last updated
17
March, 2004.
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